Wednesday, April 24, 2013

Office Space

I want to watch Office Space. It's good. (Mom here. Sean is actually watching Office Space with a huge ol' grin on his face. :D )

Monday, April 8, 2013

Sunday, April 7, 2013


I love snuggling. Snuggling is good. I can watch a movie while I snuggle. I am going to snuggle and watch Scooby Doo right now. I also like to drink V8.

Tuesday, August 10, 2010

Monday, August 9, 2010

Extreme Piercings

Sean is the owner of a second bellybutton - how is that for extreme piercings?

Dr. Daniel Jackson performed a percutaneous endoscopic gastrostomy (PEG) this afternoon at Primary Childrens Hospital in Salt Lake City, Utah. Sean is having a miserable time in Pediatric Intensive Care...but that's to be expected the day of surgery. Tomorrow Sean's new gastrostomy tube will be put to work.

What is a PEG? A lighted telescope was passed down Sean's throat into his stomach. After the tube was correctly positioned, short crosspieces of tubing or bolster were positioned to keep the tube in place. It may take up to ten weeks for the opening in the abdomen to heal adequately. (I'll let you google your own images...........)

Friday, July 23, 2010

Tuesday, July 20, 2010

2009 Muscular Dystrophy Association Summer Camp

Sean was able to attend his seventh MDA Summer Camp. He was a caveman with his buddy Ben. Best camp yet!!

Unfortunately, one of the campers was diagnosed with H1N1 (swine) flu following camp and required care in the ICU. All remaining 2009 summer camps were cancelled to keep everyone healthy. While I understand the necessity of that decision, I feel sad for those who missed out on the fun. I think the picture illustrates my point.